Development of the Huntington disease work function scale.
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OBJECTIVE: A work function measure specific for persons with prodromal Huntington disease (HD) was created to assist with workplace accommodations. METHODS: A self-report HD Work Function (HDWF) measure was developed from focus group and expert validation. RESULTS: Pilot studies with 238 people with prodromal HD, and 185 companions; and 89 people without prodromal HD, and 70 companions indicate that HDWF has acceptable internal consistency (Cronbach = 0.77), acceptable interrater reliability (r = 0.58), and acceptable convergent validity with selected items from the Endicott Work Productivity Scale (r = -0.56), Social Adjustment Scale-Self Report (r = -0.29), and Everyday Cognition (r = -0.70). The HDWF can distinguish between people with prodromal HD and people with an HD family history who do not have prodromal HD (P < 0.0001). CONCLUSIONS: The HDWF is a brief self-assessment that may be used to monitor work function.
author list (cited authors)
Brossman, B., Williams, J. K., Downing, N., Mills, J. A., Paulsen, J. S., & PREDICT-HD Investigators and Coordinators of the Huntington Study Group.
complete list of authors
Brossman, Bradley||Williams, Janet K||Downing, Nancy||Mills, James A||Paulsen, Jane S