Functional status in limb deficiency: development of an outcome measure for preschool children.
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OBJECTIVE: To develop an outcome measure of functional status in preschool children with limb deficiency. DESIGN: Parents of preschool children with limb deficiency completed self-report measures during a routine medical clinic visit. SETTING: Outpatient pediatric clinic. PARTICIPANTS: Fifty-two parents of children (ages 4 to 7) with acquired or congenital limb deficiency. MAIN OUTCOME MEASURE: The newly developed Child Amputee Prosthetics Project-Functional Status Inventory for Preschool children (CAPP-FSIP). RESULTS: Initial psychometric studies indicate high internal consistency reliability of the new instrument. Content validity was established through expert clinician review. Initial construct validity analyses confirm that the CAPP-FSIP discriminates between children with upper and lower deficiency and their prosthesis use for functional activities. CONCLUSION: The CAPP-FSIP is a promising new measure for evaluating preschool age children with limb deficiency.